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EUFASD Videos & Resources

EUFASD Videos & Resources May 2025

FASD Hub Australia – Australian Guidelines for Assessment and Diagnosis of FASD Overview
An Australian clinical practice guideline approved by the National Health and Medical Research Council for the assessment and diagnosis of Fetal Alcohol Spectrum Disorder (FASD) has been released.
https://www.youtube.com/watch?v=BCRR3FMFR3c

HNY Health and Care Partnership – Fetal Alcohol Spectrum Disorder FASD Spotlight on Hull Webinar
This one-hour webinar is aimed at professionals working in the health and care system and provides the most up-to-date information, learning and developments from Hull and the Humber and North Yorkshire FASD Community of Practice.
https://www.youtube.com/watch?v=ecLcPfzY37E

Wonderful Works Ministry – Fetal Alcohol Spectrum Disorders (FASD) and Youth Group Wonderful Works
https://www.youtube.com/watch?v=SnLbJp0QFEU

Patricia Kasper, Your FASD Coach – Unveiling Stories: The Impact of Jodee Kulp’s Writing on FASD Awareness
In the latest episode of our podcast, we delve deep into the world of Fetal Alcohol Spectrum Disorder (FASD) with the remarkable Jodee Kulp, a beloved figure in the FASD community. Jodee shares her journey as an author, focusing on her latest book, Embracing Zak, which has garnered significant acclaim for its engaging storytelling and powerful themes of neurodiversity.
https://www.youtube.com/watch?v=hpfWElh2ze0

FASD Hub Scotland and FASD Hub UK – Webinar with Alice Foote
This FASD Hub webinar features advocate Alice Foot sharing her lived experience with FASD, focusing on the challenges and successes of transitioning to adulthood and answering audience questions about life skills, independence, education, relationships, and advocacy.
https://www.youtube.com/watch?v=clyKwxRJnRQ

CanFASD – Emerging Action in Research: CanFASD Trainee Webinar Series Part 1
In 2025, eleven trainees participated in the CanFASD Trainee Program. This is a chance to learn what the next generation of Canadian FASD researchers and providers are accomplishing, to hear new research findings, and to look forward to forthcoming study results.
https://www.youtube.com/watch?v=B1Iz3SFpZdc

Patricia Kasper, Your FASD Coach – Mind-Body Connection: How Lifestyle Medicine Enhances Quality of Life with Dr. Jerrod Brown
In this enlightening episode of Living with FASD, host Patti Kasper reconnects with the insightful Jerrod Brown to explore the transformative concept of lifestyle medicine. Jerrod introduces listeners to the principles of lifestyle medicine, emphasizing its relevance for everyone, regardless of age or neurodevelopmental status.
https://www.youtube.com/watch?v=eiuwmVqIMM0

CC Animation Studio – Alcohol and Pregnancy – The Facts
All parents want to give their baby the best start in life, which is why it’s important not to drink any alcohol during pregnancy. Anything you drink, including alcohol, passes to your baby through the placenta. It stays in the fluid that surrounds your baby (amniotic fluid) for a while.
https://www.youtube.com/watch?v=UrvUMFh_rec

European Academy of Paediatrics – EAP Webinar: Every Childhood Matters -The Hidden Dangers of Alcohol
Building on the themes of the European Alcohol Health Alliance Symposium (launched May 2025), the session explores the dangers of alcohol exposure and how children are affected at every stage — from prenatal exposure to the impacts of parental misuse, societal consumption, and pervasive alcohol marketing.
https://www.youtube.com/watch?v=dEnnV8jAux0

NOFASD Australia – Turning 18 and living with FASD: New two-part resource set
Did you know that transitioning into adulthood presents unique challenges for individuals with Fetal Alcohol Spectrum Disorder (FASD)? For young people with FASD, turning 18 often brings new responsibilities, legal obligations, and complex decisions that require careful navigation.
https://www.nofasd.org.au/blog/turning-18-and-living-with-fasd-new-two-part-resource-set/Two Giraffes – Video & Animation Studio – University of Sydney – “FASD and Trauma”
Explores the intersection between Fetal Alcohol Spectrum Disorder (FASD) and trauma, shedding light on how adverse childhood experiences can compound the challenges faced by individuals with FASD
https://www.youtube.com/watch?v=HkC6ahwbvDs

FASD Awareness – FASD & STIGMA – Maggie May, CJ Lutke & Justin Shepherd – FASD Awareness Webinar #34
In this month’s webinar, we takle one of the most challenging conversations for individuals and families living with Fetal Alcohol Spectrum Disorders. Host, Andrew Keeping  embarks on a frank and open discussion with three of the world’s leading FASD advocates.
https://www.youtube.com/watch?v=D_M3MXGEtnI

Patricia Kasper, Your FASD Coach – Eating for Wellness: The Gut-Brain Connection in FASD with Dr. Jerrod Brown
In this enlightening episode of Living with FASD, host Patti Kasper reconnects with Dr. Jerrod Brown for a fascinating exploration of psychogastroenterology and its implications for individuals living with Fetal Alcohol Spectrum Disorders (FASD).
https://www.youtube.com/watch?v=ymlRQ70EgjE

Angela Geddes | Integrative Support & Wellness – EPISODE #102: Let’s Talk About the Real Risk – Autism, FASD, and What We’re Missing
This episode challenges recent claims made by RFK Jr. around autism and explores why Fetal Alcohol Spectrum Disorder (FASD) is being left out of the conversation. While autism is valid and deserves attention, the known risk of prenatal alcohol exposure is too often ignored.
https://www.youtube.com/watch?v=Bxo-Tdum4Kc

FASD Hub Scotland and FASD Hub UK – David Boulding Webinar
https://www.youtube.com/watch?v=ftXAdZnWt6k

Creating a Family – Parenting Kids with Prenatal Exposure: Practical Tips
Do you suspect (or know) that your child was exposed to alcohol or drugs during pregnancy? We discuss tips for how to best work with these children with Dr. Robin Gurwitch, a professor at Duke University’s Department of Psychiatry and Behavioral Sciences and the Center for Child and Family Health.
https://www.youtube.com/watch?v=6Oe9K1zRaJ0

EUFASD Videos & Resources April 2025

Saskatchewan Prevention Institute – Supporting Young Children with FASD
This video provides basic information about FASD and how to support young children with diagnosed or undiagnosed FASD. The tips provided can also be helpful for parents and caregivers in different contexts.
https://www.youtube.com/watch?v=tz1XTLWkDFA

FASD United (formerly NOFAS) – Patima Sing-Eisen – FASD Research Conference 2025
What a Diagnosis Could Mean. 9th International Research Conference on Fetal Alcohol Spectrum Disorders
https://www.youtube.com/watch?v=qk2Fs_HiLao

Health Nexus Santé – Discovering FASD Later in Life: Understanding and Embracing a Late Diagnosis
In this virtual training, Nancy Lockwood interviews Reinier deSmit about receiving an FASD diagnosis at the age of 56. Reinier shares how he always felt different but never knew why until his diagnosis provided clarity and self-acceptance. He discusses the impact on his relationships, health, and finances, as well as the challenges and benefits of disclosure.
https://www.youtube.com/watch?v=fZ3OsoslZFY

FASD United (formerly NOFAS) – FASD at Mid-Life: What Have We Learned? – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, Dr. Susan Stoner from the University of Washington presented on “FASD at mid-life: what have we learned?”, highlighting emerging research on mental health and substance use, physical characteristics and conditions associated with FASD in midlife, and areas where affected individuals show similarities or strengths compared to their peers.
https://www.youtube.com/watch?v=Z93BFapa8VE

FASD United (formerly NOFAS) – FASD: What’s in a Name? – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, Prof. Elizabeth Elliott led a roundtable titled “FASD: what’s in a name?” examining the utility and implications of FASD as a diagnostic term, including its links to stigma, confidentiality, and access to care, while exploring evolving understandings of neurodevelopmental conditions and their broader societal impacts.
https://www.youtube.com/watch?v=Z36cGUZ8lhk

FASD United (formerly NOFAS) – Paternal Drinking and the Epigenetic Influences on FASD – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, Dr. Michael C. Golding presented on “Paternal drinking and the epigenetic influences on mitochondrial function, child health, and FASD,” exploring how paternal alcohol use affects offspring through epigenetic mechanisms, impacts sperm and mitochondrial function, and may interact with maternal drinking to influence FASD outcomes.
https://www.youtube.com/watch?v=-Gp-a7FnSGQ

FASD United (formerly NOFAS) – Laura Bousquet – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, self-advocate and FASD United Family Navigator Laura Bousquet presented “Nothing about us without us: exploring possibilities for thriving with FASD,” sharing insights from lived experience and emphasizing the importance of including individuals with FASD in shaping the supports and systems that affect their lives.
https://www.youtube.com/watch?v=9wf78MataHA

Me and My FASD – Why an FASD Diagnosis Matters and the Importance of Staying Positive
In this video Professor Raja Mukherjee, who is the UK’s leading FASD specialist, talks with Georgia and Paul – two young adults with FASD – about why having a diagnosis matters.
https://www.youtube.com/watch?v=VG1qW0JBgUI

FASD United (formerly NOFAS) – Modifiable Lifestyle Factors to Support Neurodevelopment in FASD – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, Dr. Jeffrey Wozniak and Dr. Blake Gimbel presented on “Modifiable lifestyle factors to support neurodevelopment in individuals with FASD,” highlighting evidence-based strategies such as nutrition, sleep, and exercise that can positively influence brain development and functioning in people with FASD.
https://www.youtube.com/watch?v=xxuVh_IeQY8

FASDSUCCESS – #076 The Bofenkamps: An FASD Family Divided Then United
Today I chat with my good friend, and Caregiver Kickstart Coaching program alumni, Christine and her daughter Angelina. Not only has their relationship improved in the last year, since getting real about FASD, and working through their grief and loss, they have emerged the other side and are kicking some advocacy ass right now in their home state of Kansas.
https://www.youtube.com/watch?v=e3m6SD4GnHM

FASD United (formerly NOFAS) – The Collaborative Initiative on FASD (CIFASD) Symposium: Part I – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, the first part of the CIFASD symposium featured presentations by Drs. Edward Riley, Amanda Mahnke, Claire Coles, and Blake Gimbel, offering insights into the Collaborative Initiative on FASD’s current research, including the use of microRNAs as biomarkers, long-term health impacts of prenatal alcohol exposure, and advanced brain imaging to study neurodevelopment in individuals with FASD.
https://www.youtube.com/watch?v=LY8j1sJWDck

FASD United (formerly NOFAS) – The Collaborative Initiative on FASD (CIFASD) Symposium: Part II – FASD Research Conference 2025
At the 9th International Research Conference on Fetal Alcohol Spectrum Disorders, the second part of the CIFASD symposium featured presentations by Drs. Michael Suttie, Miguel del Campo, Jeffrey Wozniak, Christie Petrenko, and Cristiano Tapparello, highlighting advances in 3D imaging for diagnosing facial features of FASD, evaluation methods for dysmorphology, combined brain stimulation and cognitive training interventions, and the use of digital tools to improve access to care across the lifespan.
https://www.youtube.com/watch?v=qy5gbhAdZj8

FASD United (formerly NOFAS) – We Can Destigmatize FASD – Video from International FASD Research Conference 2025
This interactive full-day pre-conference session builds on the dialogue started at the 2017 Pre-Conference in Vancouver, and will focus on the pervasive stigma and stereotypes associated with Fetal Alcohol Spectrum Disorders (FASD).
https://www.youtube.com/watch?v=MpSncgQgLJU

Patricia Kasper, Your FASD Coach – The Now What: Tools for Parenting & Understanding FASD with Antonia Rathbun Lindsey
In this captivating episode of Living with FASD, host Patti Kasper reunites with the insightful Antonia Rathbun Lindsay to celebrate the impending release of her highly anticipated book, Parenting Your Porcupine: Tools for Working with Children with FASD, Drug Effects, and Other Neurodiversities.
https://www.youtube.com/watch?v=0suJG-xkqpE

Early Years TV – Free Video: Dr Carolyn Blackburn on Fetal Alcohol Spectrum Disorder
Dr Carolyn Blackburn has worked in childcare and education for 20 years and has established a reputation for supporting children with special educational needs and disabilities.
https://www.earlyyears.tv/episode/free-video-dr-carolyn-blackburn-on-fetal-alcohol-spectrum-disorder/

EUFASD Videos & Resources March 2025

Able to Care Podcast – Foetal Alcohol (Syndrome) Spectrum Disorder and FASD Assistance Dogs: Transforming FASD care
In this powerful episode of the Able to Care Podcast, Andy Baker speaks with Alison McCormack, a retired independent social work consultant and leading advocate for Fetal Alcohol Spectrum Disorder (FASD).
https://www.youtube.com/watch?v=kjNTp47oO3o

CAMH Education – What We Know About FASD: Prevention, Treatment, and Support
In this presentation, Dr. Nancy Poole shares the FASD prevention, diagnosis and intervention/support that has been generated by researchers, service providers, system planners, families, and communities across Canada who are connected to the CanFASD Research Network.
https://www.youtube.com/watch?v=usAfL4Mqxc4

clarefmTV – Over 9,000 People Living In Clare With Undiagnosed FASD
Clare County Council has heard calls for training on recognising FASD to be included in the curriculum for third level education. Upwards of 9,000 people are thought to be currently living with the disorder in Clare, despite not receiving a full diagnosis of the condition.
https://www.youtube.com/watch?v=Iy1aTaTh-Mw

CanFASD – Cross-Sectoral Alcohol Policy and Healthy Beginnings: Examples from Two Provinces
This webinar recording focusing on how two provinces, Manitoba and Newfoundland, have harnessed policy collaboration to increase governmental and community supports for people with FASD and who may be at risk of alcohol use during pregnancy.
https://www.youtube.com/watch?v=aVxOdUVErLU

FASD Hub Scotland and FASD Hub UK – Wednesday Webinar: Meet the FASD Hub Team
https://www.youtube.com/watch?v=HKJXW3NzD0U

Patricia Kasper, Your FASD Coach – identity & FASD
In episode 73 of Living with FASD, host Patti Kasper engages in a heartfelt panel discussion with returning guests Antonia Rathbun Lindsay and R.J. Formanek.
https://www.youtube.com/watch?v=XqRggc_eJyU